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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Jenni,
Sorry havent been on the forum in a while. Have all my digits crossed that you get sorted.
Mari xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi my lovely,
Have just logged onto the forum today after phoning you, and now I know why you're not at home. Keeping all fingers and toes crossed (the ones that will!) that all goes well. I would be interested to know how you got on with the endocrine tests, I've got mine coming up soon and don't know what to expect.
Hoping all goes well with approvals for adaptations to the house, wheelchair access motor, and of course not forgetting little Bernice, the visit to the childminders.
Will try and call tomorrow,
love,
Barbara
XXXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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I am home, had all the tests and the endocrine team are very much on the ball.
hospital day unit left a lot to be desired and were not good, bearing in mind the last time i was there i had an anaphalaxic shock and they denied it all and my gp complained etc....
it seems i have had a couple of extra, unplanned tests today as they re-evaluated things on the day (listening to patient a good thing i think) and have promised to speak to the rheummy team even consultant to consulant
resting now as things are pretty awful physically. but i am still in here......
somewhere
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Thanks for letting us know how things went today Jenni, have been thinking of you.
Its sound very positive on the rheumy team front, lets hope it rubs off onto everybody else, it certainly should.
Hope you have a good night, and feel a little better in yourself tomorrow.
Julia xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Jenni, I,m glad that you are home, I,m pleased that nothing went wrong for you. I must say that I had worried that something might happen. Lets hope that you gain something good when all the results are in, fingers crossed. x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jenni,
Glad things went ok for you.
Lets hope the consultants DO get their heads together to come up with a treatment plan for you.
Hope you have a good night's rest now.
Love, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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lets hope for a good outcome for you Jenni.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Praying for a head to head chat for best outcome for you,pray you sleep well and pain eases,sorry unit wasnt good,hugs. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 585
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Hi
glad it is over now Jenni
just relax to get your strength back
take care
Mary L
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 176
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Pleased to hear they tried to get thier act together for you. I hope you feel a little stronger today, now that is done. May the weekend bring some sunshine for you all.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Been thinking about you Jenni. Pleased to see all went well and no nasty reactions this time.
Lets hope that something can be sorted out for you soon and you can get some treatment that works at last!!!!
Take Care
Love Paula x x
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 84 Location: Northern Ireland
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Glad to hear things went well and I really hope they do something for you. Joy
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Jenni, Hope you had a decent night after your day of tests in the hospital. Hope there`s a good outcome for you, in that your consultants actually manage to TALK to each other! Take care, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Well it all sounds promising if they are actually taliking to one another anyway Jenni! YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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I'm glad that things are moving now, Jenni, let's hope that continues.
Love Lyn
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi
been on the phone to the hosp and i have a crp of 82 no infection etc.
blooming awful.
they wanted to see me or for me to present at a and e but i cant do it anymore. all the "whats wrong with you?! what joint is that in then?" is just beyond me.
i am due to see the rheumatologist thurs and have actually got a timed appt at 11am! wow!
I have asked the nurse to email the consultant to let him know that endocrinology are trying to be in touch.
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Sorry to hear Jenni that you are feeling so unwell today, and that your crp is so high.
I m pleased you will be seeing the rheumatologist Thursday, I am be losing the point but how can they expect you to present yourself at A & E, its beyond belief.
Hoping things improve a little for you over the weekend.
Julia xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni, glad you have timed appt, wonders will never cease!!! yes, get them to check about meeting consultant to consultant, have they never heard of a multi disciplinary meeting???!!! Surely it makes sense to get one dept to meet with the other- but then they cant be logical eh!! Lets hope the appt gets you somewhere re treatment. CRP 82!!! good luck with it all x x x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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So glad you managed to get thru' yesterday Jenni - I'm not surprised they contacted you after finding CRP so high. I just hope that the endocrine team have contacted your rheumy before you see him on Thursday. I hope you manage to get some rest this weekend. How did Bernice get on with the childminder?
Julie
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni I'm lost for words. At least yesterday got the tests sorted and that's a start and on the positive side an appointment with rheumatology next week, but A&E?? What do they really think A&E are going to do? And at the weekend of all things? Beggars belief it really does. At least you're home and can rest in your own bed with your family around you. Hope adorable little Bernice got on okay. Take care Jenni, thinking of you. Lyn x
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